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Thyroid Support Ireland

News, information and support for people with Thyroid conditions who live in Ireland

Welcome to the web site for Irish thyroid patients

Thyroid Support Ireland  provides news, information and support for people living in Ireland who are being treated for thyroid illnesses like Graves Disease and Hashimoto's Thyroiditis. 

How to Find a Good Thyroid Doctor in Ireland

 Posted by MyThyroidIreland on February 7, 2014 at 7:35 PMDelete 
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Finding a good doctor to treat thyroid problems in Ireland is not easy, but people in large cities like Dublin at least have more choices available close to home.

 I spoke to Dr Patrick Magovern, who runs the Drummartin Clinic near Dundrum in February. Dr Magovern specialises in diagnosing and treating unexplained illnesses- he has undertaken  specialist training  in a range of complementary therapies. Dr Magovern trained in Ireland. He graduated in 1980 and then worked in hospitals and general practice in Canada, where he found he was treating a lot of patients for low mood, low energy, restless sleep and hormone problems, so he began to invest in training in the area known as functional medicine.

Dr Magovern went from being very skeptical about non-conventional medicine to someone who uses the widest possible range of weapons to combat illness. He returned to Ireland in 1996 and set up the Drummartin Clinic nine years ago.

He studied complementary therapies such as acupuncture, nutritional medicine, allergens and intolerances, as well as bioenergy hormone therapies.

From a thyroid patient's perspective, Dr Magovern is one of the few Irish doctors who will prescribe natural thyroid extract. He mainly prescribes the Armour brand, and he has treated patients with T4 to T3 conversion issues and Reverse T3 too.

“Patients should beware of thinking there is just one thing wrong. People have to look more broadly,”  he told me during a brief chat on the phone , after I rang up to enquire about whether the clinic does thyroid hormone testing. It does do thyroid blood tests, but only as part of treatment there.

Drummartin charges 75 euro for the main three thyroid hormones to be measured. Most of its tests are carried out at St Vincents Hospital or by Medlab in Dublin, but the Clinic also sends blood samples abroad for testing.

If you can afford an initial consultation fee of 250 euro (Follow up appointments are 180 euro), Dr Magovern is conveniently located on Dublin's southside and his clinic site  has lots of testimonials from  patients who are happy to be quoted online. 

 In central Dublin Dr. Chii Chii Lee, practices at Prices Medical Hall,  26 Clare Street, Dublin 2, where she has a walk-in clinic that operates Monday-Friday  and  by appointment  on Saturdays. Dr Lee is described by one  patient as "very open  to prescribing Armour Thyroid and  very approachable". Dr Lee's Phone number is  01-6625050

On the northside of Dublin, Professor Tom Gorey at Mater Private has had good reports, as has Dr Diarmuid Smith at Beaumont Private.

A good tip for finding doctors is to check the information on Embassy web sites. The US Embassy site is particularly good for this. You can also check for info on Doctors who treat auto immune conditions on www.boards.ie.

A  tip for people in the Midlands is to try to see Dr Griffin at Clane Hospital, because: “she treats patients and symptoms, not just lab numbers”.

Dr Griffin has switched patients from Eltroxin, when it was not working, to Armour which improved life  for  one patient. Dr Griffin also practices privately. She used to charge around150 euro for an initial consultation and 120 euro per visit after that. She also practised at  Dublin's Charlemont Clinic and at the Bon Secours Clinic  in Glasnevin.

If you find a good doctor or clinic, please tell us here  why you like it, where it is , and roughly how much a consultation  there costs.  

Finding a doctor who will listen to symptoms and who is experienced in treating thyroid illness is  the query that  we get the largest number of requests  for here at Thyroid Support Ireland. So please share your doctors infor here.

Sarah Blogg also found  Dr Rafid Khashan at the Dame Street Medical Centre in  Dublin 2 was open to prescribing natural thyroid hormone.  The Clinic is at 16 Dame Street Tel: 016790754. Or email: damestreetmedicalcentre@gmail.com

www.damestreetmedicalcentre.com

http://www.drummartinclinic.ie

 

Ever wish you could meet up with a few other people to talk thyroid?

Then you are in luck, because  TSI's second patient meeting  could happen this Autumn.

Thyroid Patients from across Ireland are being invited to meet others at a Dublin hotel  to share tips and information about how they cope with different kinds of thyroid illness.

TSI   organisd  the first Thyroid meet-up in Dublin on March 26 this year .

The evening  kicked off around 5 pm  in  the Russell Court Hotel, on Harcourt Street, Dublin 2.As well as basic information for newly diagnosed patients on  how to manage thyroid conditions, the event  included a talk by medically qualified nutritionist Louise Rossney of www.rossneyconsulting.ie and by  Hashimoto's patient Sarah Blogg founder of www.Thyromind.info, a UK web site set up nine years ago.

Sarah explained how thyroid malfunction can affect mental health and she outlined some  useful strategies we can adopt that can help us to fight back and regain thyroid balance.

The meeting was organised by Shan Kelly of Thyroid Support Ireland. TSI is an Irish  patient organisation  set up in 2010 to provide  support on managing thyroid conditions.

The March gathering was a chance for Irish thyroid  patients to meet  people they have chatted with online through the TSI web site.

Everyone who came received a 2014 Naked Fluoride Calender donated by our third speaker on the night - anti-fluoride campaigner Aisling Fitzgibbon. 

Aisling is taking the Irish Government to court for medicating Irish waterwithout gaining her consent with fluoride compounds. Fluoride compounds act as anti-thyroid drugs by disrupting endocrine function.

All proceeds from the evening - around 600 euro - went  to The Friends of St Luke's  Hospital, a charity which supports children and adults who attend Ireland's leading cancer treatment centre in Rathgar.

How fluoridated water affects the thyroid gland


By Paula O’Sullivan

Blessington-based hypnotherapist and Reiki practitioner Paula O’Sullivan is hypothyroid.

Paula is also one of the growing number of Irish campaigners who are demanding the Government acts now to allow local authorities to remove  Fluoride from Irish water.  

Ireland is now the only country in Europe that insists on fluoride being added to local water supplies.  

Here Paula explains exactly how she realised  Fluoride was harming her health.
 
“Back in April, I was in good health and doing research for a Wellness Programme I was developing for clients. I learned about the importance of water, and how dehydration can cause palpitations. So I decided to make sure  I drank eight glasses of water every day.
One week and 56 glasses of water later, I wasn’t well. I had developed a dry, itchy rash on my face; my skin was dry; and I had massive palpitations and fatigue.
What had gone wrong? I had expected to be feeling on top of the world.
That is when I learned about Fluoride and how it adversely affects thyroid function.Too much Fluoride is highly damaging to the Thyroid  and  it can wreck its normal functioning.
I found out that Fluoride used to be given as a medication for Hyperthyroidism, in the form of pills, fluoride baths and in water. They discontinued this after Fluoride was proven to destroy the thyroid gland.

I learned that Fluoride uptake is accumulative. It is absorbed by saliva and
builds up steadily. So suddenly increasing the water you drink can have a big effect, as it did on me.

Fluoride is actually industrial waste. Hydro Fluoro Silicic Acid is a by-product of the Aluminum and Phosphates Industry. You can’t dispose of it legally in oceans or rivers, as it is classed as a Grade 2 poison.
Yet through a huge con trick, it has become acceptable to put it into our public water supplies in small, seemingly harmless doses.

The distressing thing for anyone who is hypothyroid is that what Doctors were prescribing to people with overactive  thyroids back then, is the equivalent of what is in every glass of water  we consume in  Ireland today. No wonder I wasn’t feeling well!

Fluoride is an enzyme poison which wreaks havoc on the human body by displacing the  iodine which is essential for healthy thyroid function.
Fluoride  is a halogen, a group of chemicals closely related to Iodine. Too much fluoride in a body leads to the uptake of iodine being compromised. Essentially, the iodine a healthy thyroid gland needs to function, gets ejected by fluoride.

Fluoride undermines the immune system by creating  a distortion of protein structures in the body. This causes white blood cell confusion, and can lead to Autoimmune Diseases like Thyroiditis, Hashimoto’s, and Graves Disease, where the immune system  attacks cells in the thyroid gland that they don’t recognise  as  self and so perceive as a threat.

Fluoride can be ingested from many sources. Fluoride is absorbed by your skin in the shower or bath. It is in the pesticides used on fruit and vegetables, and in all foods, drinks or bottled waters prepared using fluoridated water. It’s also in most toothpaste and rinses.
 
Fluoride isn’t the innocent water additive that we’ve been taught to believe it was. For three decades Irish people have been told it was necessary to purify our water and to protect our teeth from tooth decay.  In fact, fluoride is just as likely to damage teeth through Fluorosis. Fluoride is  also blamed for a slew of other health problems such as osteoporosis and arthritis.

Adding it to our water costs  us hundreds of thousands a year.  Now, a new report by  an independent water engineer Declan Waugh below, says that money  could  much better spent.

If you agree and want the government to allow us Fluoride free water, please sign the online petition here http://www.gopetition.com/online/10199.html

Links to anti-fluoride groups in Ireland
Fluoride Free Water Group http://www.fluoridefreewater.ie/
Or contact www.fluoridealert.org
There is now a Freedom From Fluoride Group on FaceBook  https://www.facebook.com/#!/groups/335951713136539/
Declan Waugh’s report on Human Toxicity regarding Fluoride http://www.enviro.ie/latest_news.html
Professional Perspectives on Water Fluoridation http://www.youtube.com/watch?v=88pfVo3bZLY
How Fluoride can cause Hypothyroidism
http://www.youtube.com/watch?v=UkJuWLMaoG0

To read Paula's other articles go to http://paulaosullivan.wordpress.com

 This film extract  tells more about the history of fluoridation in the US and how people are fighting the effects of fluorides on their health

https://www.youtube.com/watchfeature=player_embedded&v=tx0ROInM3C4 

Thyroid Change -Better treatments needed now

TSI is backing the Thyroid Change petition, which was started by one of our members Denise Rodriguez.The Change petition asks thyroid doctors and endocrinologists around the world to commit to upping  their game by improving the standard of care they currently offer to thyroid patients.The petition has already been signed by thyroid activists and patient groups around the world.

We all  want  better and  earlier diagnosis of thyroid illnesses, more  listening to patients and a wider use of natural thyroid hormones or extract,  and well as easier access to T3 substitutes such as Ti Tre.Patients Groups  believe that T3 substitutes like Ti Tre should be more easily available to those who need them. That includes people who have had a thyroidectomy, perhaps because they have had thyroid cancer.

 Every signature will generate a letter that will be sent to professional endocrinology organizations worldwide. You can sign the petition here.

:http://www.change.org/petitions/endocrinologists-patients-with-thyroid-dysfunction-demand-better-care

 Help us unite and create strength in numbers!

Every signature will generate a letter to endocrinologists around the world.

The First World Thyroid Forum
 met in the UK in April 2012  chaired  by Dr Gordon Skinner

Thyroid Support Groups from the UK and Europe met with  medical professionals in the Ardencote Manor Country Club, Claverdon, Warwickshire on Friday 27 April 2012 to set up The first World Thyroid Forum

 
The World Thyroid Forum  was set up and chaired by  Dr Gordon R B  Skinner, who is also compiling a worldwide register of patient support groups. you can read more about  his four pronged strategy to improve  thyroid patient care here http://www.worldthyroidregister.com
 
Thyroid Cancer Support in Ireland

Thyroid Cancer hit the news in Ireland in 2012  when Radio and TV presenter Sile Seoige revealed that she was being treated for thyroid cancer. Sile told the Sunday Independent about her shock when her cancer was  diagnosed on a Monday morning in late 2011. Sile Seoige  had her diseased gland removed two weeks later and  she  has also had radioactive iodine and isolation treatment at the Blackrock Clinic in Dublin. She is now back at work presenting Shenanigans, her show on Newstalk radio. Seoige says talking about  living with Cancer helped her  to deal with herdisease,  and she also helped Newstalk to  make a documentary on the illness. But she is keen to preserve her privacy and is  not planning to do any more interviews. Irish  thyroid cancer patients who need advice or information can check out www.thyroidcancersupport.ie , a web site set up  specially for patients and survivors of thyroid cancer in Ireland by  another Irish thyroid cancer survivor Mary McGarry. Mary set up the site after she realised that there was no support group in Ireland 

www.thyroidcancersupport.ie Keep Mary's group in mind if you come into contact with anybody who wants to speak to a qualified counsellor and psychotherapist who has been diagnosed with thyroid cancer or has recovered. Mary can be emailed on info@thyroidcancersupport.ie.

She explains here why she set up www.thyroidcancersupport.ie

By Mary McGarry

" Every person is unique, and  every experience is different, but one thing is for sure, every journey through cancer is difficult.
I was diagnosed in May 2005 (aged 30). I had a full thyroidectomy, followed by radioactive iodone treatment. I was in isolation for a week.  It was a very tough time for both myself and my family. I will be on medication for the rest of my life. 
Helping people to live with cancer, and providing  support and understanding  to them on their journey is one of the main reasons for a support group.
Thyroid cancer is very rare, but unfortunately more and more people are being diagnosed and this is expected to increase over time. It really does help to talk to someone who understands what the experience can be like.
I am a counsellor and this is how I feel I can help. I really feel that the psychological toll cancer can take can be as painful as the physical pain. As thyroid disease and cancer is very hormonal related, it can have an even more debilitating effect on the person.
This thyroid cancer support group is an opportunity to get support from others who have been on this journey. The support is free and can be availed of  at any time.
The Thyroid Cancer Support Group Ireland was set up to support patients who have been diagnosed with Thyroid Cancer in Ireland. The group  was established by a thyroid cancer survivor with first hand experience of  the diagnosis and treatment.
We are not medical experts and highly recommend that  p atients speak to a medical expert in this areain relation to their treatment. How one individual is treated for cancer can be very different to how another person, even with the same cancer, is treated.
There are five main types of thyroid cancer:
  • Papillary thyroid cancer is a very slow growing cancer. About 4 out of 5 thyroid cancers are papillary so it is the most common type. It has a high cure rate.
  • Follicular thyroid cancer is less common and usually found in older people.

    * Medullary thyroid cancer is a rare type of thyroid cancer that can run in families.
  • Anaplastic thyroid cancer is also a rare cancer. Most people who get this cancer are older. It grows quickly and can be difficult to treat.

    * Hurthle cell cancer is a rare type of thyroid cancer. About 4 out of every 100 cases are this type. It is sometimes present in people with benign thyroid disease.
Thyroid books that might help you - June 13 2011 - By Shan Kelly

Which thyroid  book did you find helpful and why ? We'd love to know, so dish :)

 Review of Stop The Thyroid Madness by Janie A Bowthorpe

 First published in 2008, Stop The Thyroid Madness – a Patient Revolution Against Decades of Inferior Thyroid Treatment, by Janie A Bowthorpe, (or STTM for short).

STTM is a book that you should probably buy if you are thinking of switching from synthetic pills to one of the natural thyroid treatments available.

When I first read this book, I found the tone a little histrionic, shrill and overly negative about the medical profession.  The first Chapter is called: Why Thyroxine T4-only Treatment gets a Big fat “F”.  But on second and subsequent readings, I found the book full of useful information.

STTM attempts to encourage patient revolution by encouraging thyroid patients to question doctors’ sometimes blind adherence to the use of synthetic or man made rather than natural hormones.   Bowthorpe shows how  the use of synthetic thyroid treatment has become an orthodoxy only since the 1960s.

Janie Bowthorpe is a patient advocate who watched her mother suffer from years of poor thyroid treatment. She then struggled with hypothyroid problems herself and took synthetic hormone for 17 years until   2002, when she discovered a Yahoo group  talking about natural dessicated thyroid.

Bowthorpe began to investigate the history of thyroid treatments and in July 2002  she found a nurse practitioner who helped her make the switch to natural thyroid. Gradually she noticed a number of  “180 degree changes” as she shifted from experiencing debillitating exhaustion to being active, having glossy hair and having  much better stamina.

Once you understand the personal reasons behind Janie’s evangelical approach,  her dramatic use of language becomes more bearable and she presents a lot of good evidence and interesting case histories collected from thyroid patients in her years as a thyroid campaigner.

The Madness referred to in the book’s title is the medical profession’s continued over-reliance on the chemical L-thyroxine, or levothyroxine sodium (a chemical substitute for the T4 hormone which is produced by the thyroid gland) to treat people with thyroid disease.

 Sold under brand names such as Eltroxin, Levoxyl and Synthroid, chemical T4 substitute pills are the default method of treatment for anyone who needs more thyroid hormones than they can produce themselves (hypothyroid patients) and also for hyperthyroid patients on Block and Replace regimes.

Bowthorpe explains in Chapter One that T4 is the thyroid storage hormone and that it is the most plentiful of all the hormones produced by the gland. Our bodies convert T4 into T3 or Tri-iodothyronine by adding iodine to it. T3 is essential because it is the only kind of thyroid hormone that can be easily used by cells and it is much more powerful than T4.

She explains that before the chemical formula for the T4 hormone was isolated or discovered by Nobel- prize winning biochemist Edward Kendall back in 1914, people with thyroid problems were treated with natural thyroid extract. By 1926 British chemists Harrington and Barger had used Kendall’s  formula to create synthetic Thyroxine.  

Thyroxine was first administered intravenously but it had problems and didn’t become the standard treatment until the late 1950s, when drug companies began looking for products that could be profitably mass produced.  The book tells how Kroll pharmaceuticals first produced Synthroid in 1955 and how by 1963 physicians in Canada and the US began using pills as the default option instead of dessicated or dried thyroid extract.

Bowthorpe rather rapidly concludes her first chapter by claiming that T4-only treatment has been a huge failure because the human body was not meant to live on a storage hormone alone.  The gland also produces T2, T3, T1 and Calcitonin, so if your thyroid has been removed, you will need all of these. Our bodies should produce T4 and T3 in a ratio of 80:20.

The Preface explains Janie’s personal thyroid history, and that of her hyperthyroid mother, who was one of the first generation of women to be treated with T4-only medication. Janie tells how her mother had her thyroid gland removed aged 21, but it grew back and she was treated with radioactive iodine and then T4. Janie’s Mum lived what she calls a Levothyroxine nightmare of chronic depression, hours of counselling and Electric shock Therapy which dulled her wits. She gained weight and had to nap daily until she was 83.

 Bowthorpe believes that millions of women are still needlessly suffering from a long list of symptoms that she and her mother lived with, that result from T4-only treatment. Page 29 has an exhaustive list of problems noted by patients she contacted, who are on T4 only medication. These include foggy thinking, forgetfulness, dry skin, broken hair and a cold bum.

 Bowthorpe used the Internet to find thousands of others who have benefitted from switching to natural thyroid extracts and she has written this book to spread the word that natural thyroid  is far better than T4-only medication.

 Chapter Two explains explains What Pigs have To Do With it - how  Natural Dessicated thyroid from pigs or sheep has been used  to treat hypothyroidism since the 1800s. Brands such as Armour, Naturethroid and Westthroid made by companies such as Forest labs and RLC Labs have five components and what they all do. 

She explains how in 1963 a fake batch of such product was given to US distributors and caused a lot of doctors to switch to prescribing the new chemical form produced by Kroll Pharmaceuticals before the hoax was discovered.

The result was: “five decades of T4-inadequacies for patients,” though she notes that old timers who were on dessicated thyroid and switched to levothyroxine noticed the return of their symptoms.

Bowthorpe notes that Thyroid patient advocate Mary Shomon started her Yahoo group in 1999 and that mention of Armour appeared soon after that on the forum.

Bowthorpe  started  the Yahoo Natural Thyroid Users Group in 2002, and several other groups followed.

Chapter 3 focuses on what patients have learned from each other in such fora, especially focussing on how some lab tests are more helpful than others and on how to correct problems encountered in making the switch from synthetic to natural thyroid.

This book is particularly helpful in giving advice on finding the right dosage for you and on combining natural and synthetic hormone replacement.

Chapter  7 is about dealing with Doctors and finding a good one.

Chapter 9 looks at how low T3 is linked to depression and other emotional problems and there is a very good bibliography as well as excellent information on cortisol and adrenal fatigue, as well as info on how and when to take supplements like iron, calcium, selenium and zinc.

Bowthorpe has since updated this book. You can buy the latest 2011 edition from her website Stop The Thyroid Madness.  STTM  also  has a group on Facebook, as does Janie.

May 18 2010 

Danish Researchers Report T3 Treatment Has Benefits and may be particularly important to people with particular genetic coding.

Danish  researchers have reported a landmark study in an influential international medical journal of endocrinology  which  shows that treating  hypothyroid ptients with T3 as well as T4 had a positive effect on more than half of those in the study and fewer side effects than the conventional T4 only treatment now given to millions of patients around the world. This news is relevant to the still-raging debate about the increasing use of natural thyroid extract - which contains  the T3, T4 and T2 thyroid hormones.

Many hypothyroid patients such as author Janie Bowthorpe, who wrote  "Stop the Thyroid Madness", have found a marked improvement in their condition when they switched from using the chemical compounds such as levothyroxine (marketed here in ireland under the brand name Eltroxin).

 Natural thyroid extract is not normally prescibed by Irish Doctors. If you found one who does please  let us know.

Irish Comedienne Maeve Higgins has Graves Disease, but says it hasn't made her change her Stand-Up Comedy Act

In  February 2012  The Sunday Times magazine ran an interview with Irish Comedienne, Maeve Higgins, who was recently diagnosed with Graves Disease. The article said that she pays a lot more  attention to fitness now.

Maeve contacted us to say she has not changed her stand-up comedy routine as a result of having Graves Disease. You can check out her site here www.maevehiggins.com

Graves Disease Coffee Breaks in Ireland this Year?

Fancy a Coffee? We are trying to organise  Graves Disease Coffee Breaks all around Ireland this year.

If you'd like to meet for a coffee break anywhere  in Ireland this March, let us know here.

One new member here is Marpo, or Elaine, who started the Graves Disease Coffee Break back in 2009. If you would like to help us organise a Coffee Break for Irish Thyroid patients in 2012, let us know when would be best for you and we will get to work on it.

We link to other websites around the world and offer information on  foods, mineral and vitamin supplements that can help you regain thyroid balance.   We focus on foods that help your body heal and on exercise options available in Ireland to help you stay fit and promote weight loss.

 You can also email Elaine , who started the Thyroid Disease Coffee breaks in the USA back in 2009, (Elaine is at tdcoffeebreak@gmail.com)

or  mail Shan in Dublin  on shan.sharklet@gmail.com

 So far a few of us of us are trying to plan a meeting in Dublin for coffee . We are hoping to meet near  St James Hospital. If any other TSI members are  planing to meet up around the country, let us know what you're planning to do.

On Saturday August 22, 2009,  127 people met up for a "Coffee Break" at 10:00 am their time.  The next Saturday more people joined the coffee break.  The first coffee break for Graves' Disease had people from 13 states in the USA.  People in Ireland, Australia, Canada and England  also joined in. People joined relatives or friends they know who have thyroid illness to chat and have fun. Some went camping or out for a walk with friends.  All breaks were organised over  a two week period.

On March 5, 2010
Denver had a Coffee Break Co-Thyvent organised with Dear Thyroid at Morse Park.

It went from10am to4pm,  at 8180 W. 20th Ave, Lakewood, Colorado.  There was  Free coffee, tea, hot chocolate and cookies.  Prizes, cartoons to color and information on Thyroid Disease.   If you'd like to help organise a coffee break in Ireland t,his March, Please R.S. V. P. to tdcoffeebreak@gmail.com

or check out Elaine's website at http://gdcoffeebreak.weebly.com/

She says a St Pat's Coffee Break sounds great.  I will get right on that. I want to make a big yearly Coffee Break on August 16 of every year in honor of my husband who has helped me so much, with smaller ones thropughout the year.  So March 17th will be our 1st this year.

Supplements Can be controversial -                      Which ones have helped you Most?

Supplements are a more controversial topic than you would think. Antioxidents such as Selenium and Co Enzyme Q10 and a good Multivitamin can help alleviate many of the symptoms experienced by people with thyroid disease but you need to takE care about combining them and when you take them as some can interfere with meds. Sometimes its worth spending a little more to get the right combinations, as levels of one mineral taken can affect your absorption of others.

We'd like to list food supplements available in Ireland that are reccommended for and by thyroid patients. My top list includes the Omega oils - 3,6 and 9, Selenium, Zinc, Co Enzyme Q10 and vitamins B,C,D and Calcium. But it is better to get these from a good diet rich in fish and green vegetables rather than from a bottle, so this year, I'd really like to include more recipes on the site. So If you can bake a mean fish pie, please tell us how you do it. :)

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